So I thought I would write a blog not to share my experience but to ask for advice as I have searched the net high and low and even paid to join forums but I haven’t been able to find any stories what so ever on this topic.
My next scheduled surgery it to de fuse my organs as I am now passed stage 4 Endo and I have been diagnosed with frozen pelvis disease. I am desperate to find out more about this procedure.
From what I understand already from my previous gynaecologist my uterus, bowel, tubes and ovaries are fused together by Endometriosis, adhesions and scar tissues.
All I know is I’m booked in for this surgery very soon before my bowel collapses but I would really like to learn more about it and speak to other women who have had this surgery which seems to be quite rare.
Most of what I have found is told that it is a preparation surgery for a full Hysterectomy?
I am due to start my Zoladex injections (supposed to be last week but I’ve been putting it off) has anyone else had this ??
I understand the Zoladex injections are a hormone used to treat cancers such as breast cancer and prostate cancer to prepare the lining of the uterus for surgery to correct abnormal bleeding.
I am desprate to find women who have had this Frozen Pelvis operation and to hear their experience and advice.
With your help to share this and raise awareness hopefully it will reach the right women to speak out and share their experiences.
Thank you for your time in reading this blog, please get in touch of you have any advice you could give.